Showing posts with label time. Show all posts
Showing posts with label time. Show all posts

Thursday, January 08, 2015

January 8, 2015 - What You Can't See in the Tide Pool

A poignant personal reflection on life and death, today, from Anne Lamott's book, Traveling Mercies:

We were, in fact, going to learn later that afternoon that my father had a brain tumor on the word section of his brain, a metastasized melanoma, something no one had ever survived at that time. In just a week or so, doctors were going to take out as much of the tumor as they could, but they weren't going to be able to get it all; its tentacles reached deep inside his brain. He was going to come home from the hospital to his girlfriend's house looking like Dr. Frankenstein had had a go at him. He was going to have the most aggressive forms of radiation and chemotherapy available, be part of a clinical trial that wouldn't work for him; he was going to have one good year in between these treatments where he would be able to work off and on, and walk with us every day; he was going to live to see John graduate from Berkeley; he was going to live to see my younger brother graduate from high school; he was going to live to see me sell a novel about our family to a fancy New York publisher; he was going to live to read a draft of it while his brain was still functioning.



But then the cancer was going to start to eat away at his mind, and he was slowly going to end up like a huge friendly toddler. He was going to have to bear knowing for a while that his mind was going; he was going to have to bear letting his kids and girlfriend dress him, clean him, feed him; he was going to end up living at the one-room cabin with me and Steve, his girlfriend and oldest friends around, playing Pete Seeger on the stereo, and Billie Holliday, Joan Baez, and Mozart, the Modern Jazz Quartet. He was going to end up in a coma a month before he died, the cabin turned into a hospice room and us the stricken nurses. My father's handsome fair face was going to have tumors on it— tumors on the skin that today was flushed with health. The cancer was going to spread like a chain of stores, and he was going to need morphine and catheters and lemon swabs and fleecy bedding. Maybe he would hear the music we played on the stereo in the cabin, maybe he would be aware of us watching him through the night, but what we did not know that day on the lava rock was that he was going to die two years from this August morning—this morning when the three of us were walking about peering into tide pools, with our dog Muldoon bumping into our legs, the late-summer diffusion of light making everything in the pools seem larger: the sea anemones, the bloom of algae, the tiny crabs.

Saturday, June 29, 2013

June 29, 2013 - "Time, Time, Time Is on My Side, Yes It Is"

OK, this is really good news. A study of the survival rate of follicular lymphoma patients is showing a significant and steadily growing improvement since the 1960s.

The study results are published in an article, “Improvements in observed and relative survival in follicular grade 1-2 lymphoma over four decades: The Stanford University experience,” in Blood, June 18, 2013.

I don’t have follicular lymphoma — the small cells in my “B-cell, diffuse mixed large and small cell” grading evidently don’t display the same shape under a microscope as do follicular cells — but both are small-cell indolent lymphomas, treated more-or-less the same way. So, I take this good news to apply to my situation as well.

I’ve known this for years — that survival rates are getting better and better, as new treatments are steadily being rolled out — but it’s good to see some actual numbers, as part of a long-term historical study.

The study conducted at Stanford University identifies four historical eras:

Era 1, pre-anthracycline (1960-1975)
Era 2, anthracycline (1976-1986)
Era 3, aggressive chemotherapy/purine analogs (1987-1996)
Era 4, rituximab (1997-2003)

I’m off the chart in this study — a member of Era 5 — because I received my R-CHOP chemo (three chemo agents including anthracycline, plus the steroid prednisone, plus rituximab) in early 2006. So, my odds ought to be as good as, and probably better than, the era-4 patients.

Median overall survival rate steadily improved from approximately 11 years in eras 1 and 2 to 18.4 years in era 3. It’s not yet been reached for era 4 — because too many people in that cohort are still alive for researchers to have established their median age at death.

OK, so pre-rituximab follicular lymphoma patients are surviving for an average of 18.4 years after treatment. Rituximab-era patients up through 2003 are presumably doing much better than that (although the researchers can’t say, yet, by how much, because the numbers still aren’t in). I’m in the 15-year cohort beyond even that, that still hasn’t closed.

Even if the Era 4 numbers were to surprise everyone and reflect only a very modest gain (say, a 20-year average overall survival rate), that would peg the typical life expectancy of people who were treated at age 49, as I was, at age 69. Yet, because of the revolutionary impact of rituximab, the Era 4 group’s survival rate will likely prove to be much higher than that.

The news gets better. I’m not in Era 4. I’m in the yet-to-be-studied Era 5. Projecting the Stanford researchers’ steady increase into the future, that would push the average overall survival rate for patients from my era higher still.

I’m aware that I’m basing this speculation on the abstract, rather than the full article (which requires a subscription to the journal, Blood, to read online). I’m also aware that, once we get out of Era 3 (the latest one for which an actual median overall survival rate can be measured), we’re dealing in some very soft — and in the case of my Era 5 — even non-existent numbers. But, the trends look good.

“So teach us to count our days that we may gain a wise heart” (Psalm 90:12). I’m pretty sure the psalmist is talking about remaining aware of just how soon one’s own death may be coming. Does numbering our days in the opposite direction make us less wise?

I don’t know, and I don't much care. I’ll take the good news, all the same.

Monday, February 13, 2012

February 13, 2012 – Link to My Past


I’ve been recovering at home for the past week, following last Monday’s surgery for benign enlargement of the prostate.  Everything went well, as predicted, and I’m on track for a full recovery.  Tomorrow I’ll venture back over to the church office, and see how things go.

Today, though, I’m thinking about an object that came into my possession recently.  A few days before my surgery, I did a Google search for the name of my father’s old business, a high-end men’s clothing store called Wilton & Woolley.  It was located on Main Street in my hometown of Toms River, New Jersey.  (The “Woolley” name belonged to a silent partner, a haberdasher from another town who had fronted him some money to start the place.)  My father, Carlos E. Wilton, Sr., operated the store for a decade or so in the late 1950s and early 1960s, before getting out of the business in the nick of time, just before Toms River’s once-vibrant Main Street was bled dry by a new shopping mall on what was then the outskirts of town.  Dad used to tell my brother Jim and me that Wilton & Woolley was our family business, that we all owned it together and that one day maybe we kids would have it for our own.

I can’t imagine being a retail merchant, myself – even if an old-fashioned haberdashery like his could have survived to be a going concern today.  Yet, that’s the way my father used to think when we were kids, and who were we to disabuse him of the idea?

I was looking the other day for a photo of the Wilton & Woolley storefront to put on my Facebook timeline, and never did find one.  Google led me, instead, to an eBay page, where somebody was selling an old printer’s block with the Wilton & Woolley name on it.

It was a strange feeling to run across that item.  It felt vaguely wrong to see it there, like it was a piece of my family heritage on the auction block.

In fact, this hunk of wood and metal had never been owned by anyone in my family.  Back before the days of computer graphics, print shops would create metal plates they would insert into a rack beside similar blocks, along with a whole lot of the moveable type that was then their stock in trade.  Then, they would slather ink onto the whole assemblage, and run as many copies of the letterhead, handbill or brochure as might be needed.  Once the job was finished, printers would save blocks like this one to reuse in the future.  In fact, on the bottom of the piece of wood is the name and address of the long-shuttered print shop – evidently one my father patronized for advertising.  The store name appears in the jaunty, 1950s typeface he always used, the closest thing Wilton & Woolley ever had to a logo.

I felt like I had to have the thing, without knowing exactly why.  I’ve got no place to display it, no real use for it.  God knows we’ve already got way too much bric-a-brac in the house.  Yet, for 15 bucks I figured I could afford to free it from the auction block, so I did.

It arrived in the mail just after I got home from the hospital.  With its wood-block backing, it’s about 5 inches long. It’s hefty, substantial, reassuring to hold.  The wood still bears an ancient smear of black ink. To me, it feels like a link to my past.

I’ve got a few small items associated with my father, but not much.  Sadly, his life contracted in his later years, as he fell victim to years of substance abuse – alcohol and tobacco, the drugs of choice of his generation – and what was, very likely, undiagnosed clinical depression. After selling the store, he hit the road as a traveling salesman, first selling school library books for major publishers and, later, law books.  When he was motivated, Dad won all the sales awards.  Yet, inevitably, he’d grow tired of the grind.  He would slack off on the sales calls, get into some kind of argument with the bosses and they would part ways.   He jumped from one publisher to another in that way, every few years.  After he and my mother divorced, he switched to selling life insurance.  Abruptly, Dad moved clear across the country to the Central Valley of California, where he’d grown up, intending to start afresh in the life-insurance business out there.

My father ended his working life as a night clerk in a convenience store called the “Git-n-Go” (photo is not of his store).  By that stage of his life, he amiably settled for enough money to pay the rent and keep him in booze and cigarettes.  It didn’t seem to faze him when the store was robbed, twice, on his shift – once at knifepoint, giving him a little scar on his neck where the knife-tip had broken the skin.  He never even told us when these things happened.  We learned about them only years later.  Not a big one for communication, was my Dad.

After he almost died from a dissecting aortic aneurysm – that led to an air-ambulance helicopter flight to Stanford University Hospital for herculean surgery to give him a new aorta – he moved back east to Newton, Massachusetts, to an apartment down the street from my brother, Jim.  Dad had finally quit smoking by then – a month in ICU on a ventilator will do that to you – and there he lived the last year or so of his life, subsisting on two or three six-packs of Budweiser a day, because he figured it was better for him than the Canadian whiskey (and, later, vodka) he’d formerly favored.

Nothing of what my father did in his working life left any sort of legacy.  He always had the misfortune to find himself on the downward slope of major economic change, but did manage to bail out in time before the wave crashed.  First, the 1960s blue-jeans era reduced the market for “Mad Men” tailored suits and fedora hats.  Then, the advent of the shopping mall did away with most Main Street family businesses of any kind.  Dad did well in the book business for a few years, but was fortunate to jump ship before the Internet changed that world forever.  By then, I suppose he was feeling burned-out as a salesman, but it was all he knew how to do.  Life insurance was never a good fit for him.

I’ve only seen Arthur Miller’s “Death of a Salesman” once in my life, but I know I could never bring myself to do so again.  That grim drama’s just too close to home.

The printer’s block in my hand feels like a sort of legacy.  It’s solid and substantial, concrete evidence of a nearly-forgotten family business my father hoped and dreamed would outlast him.  Maybe he imagined that, in time, he would buy Mr. Woolley out, and he’d rename it “Wilton & Sons.”

At age 55, I’ve reached the stage of life where I’m thinking about my own legacy.  A couple of cancer experiences have pressed such ruminations upon me a bit earlier than most, and this recent surgery and slow recovery have reminded me once again that, as that spoilsport Isaiah puts it, “all people are grass, their constancy is like the flower of the field.” (Isaiah 40:6)

Myself included, of course.  Parish ministry is notorious, even in the best of times, for its abstract, hard-to-categorize results.  In this profoundly confused era, we who pastor mainline Protestant churches are all too often reminded that we’re serving a shrinking, aging market.  I’ve grown quite tired of reading articles in professional journals that include the familiar Cassandra-words: “If present trends continue...”

What will my children hold in their hands, one day, that reminds them of me, of my years of toil in the vineyard of the Lord?  A Bible, a calling card, a tarnished home-communion set, a disintegrating copy of one of the pulpit-helps books I’ve written?  As my books go out of print, much of what I’ve created, in the form of writings, lives now on the Internet: sermons once voiced in their time, but which now persist only as ghostly electrical impulses, mere droplets in a vast and ever-expanding sea.  As the church continues to lurch through rapid societal change, I wonder: will my grandchildren yet unborn even know what a sermon is – homely, spoken words of testimony, unadorned by electronic finery?

Ultimately, I suppose, my legacy is my children – as my brothers Jim, Dave and I are my father’s legacy.  After more than 20 years of ministry in one church, and 6 years before that of guiding others into ministry as a seminary assistant dean and admissions director, there’s also another group of people that are my legacy.  Those, of course, are the other lives out there I’ve touched, and – I hope, on my best days – influenced for the better.  Sure, a great many of the babies I’ve held in my arms at the baptismal font have drifted away from the church in adulthood, but not all.  In a time of convalescence such as I’m now going through, the many cards, emails and other caring communications I’ve received remind me that what I do continues to be appreciated.

“O that my words were written down! O that they were inscribed in a book! O that with an iron pen and with lead they were engraved on a rock forever!  For I know that my Redeemer lives, and that at the last he will stand upon the earth...” (Job 19:23-25).  For any of us, our true legacy is no block of wood with lead type fixed upon it.  It’s flesh and blood.  As it was for my father, it will one day be true for me.  Soli Deo Gloria.

Tuesday, September 27, 2011

September 27, 2011 – Survivor Time

A little op-ed article in our local newspaper was written by an artist, Shari Epstein, who happens to be a breast-cancer survivor.  Shari reports how some of the paintings she created during her chemotherapy and subsequent radiation treatments took on a rather dark and ominous tone.

She also observes how her experience as a cancer survivor has changed the way she looks at time:

“I am a survivor because having cancer reminds us just how fragile our lives are. For me, it changed the immediacy of wanting to accomplish my goals. It changed my appreciation of the joys in my life. It left me intolerant of wasting my time.  Cancer makes time a new precious commodity. Enjoy it, embrace it and hope you have lots of it.”

I can relate to what Shari says.  Since getting cancer, I’ve probably been working harder than ever before, particularly on writing projects.  I have more of an awareness, now, that my time on this earth is limited.  I also feel some of that same impatience she reports with experiences that seem to be time-wasters.

I’m more concerned than before with leaving my mark on the world, with accomplishing some things that will set me apart from the crowd.  Previously, I would have characterized some of those daydreams as hopes or desires.  Now, they’re closer to goals.

It’s paradoxical that I’m doing this, because of another learning I’ve had as a result of my cancer experience: that cancer just is, that it falls upon certain lives like the proverbial rain that falls on the just and the unjust.  If the R-CHOP had made no dent in my lymphoma, if it had snatched me from this world at age 50, I wouldn’t have blamed myself for that.  I might have been angry, or frustrated, or sad.  But, I wouldn’t have said it was my fault.

Now, with my lazy, indolent cancer hanging back and not doing much of anything for the past six years, I’m inclined to blame myself for any aspect of my life over which I do have control, but that I haven’t turned to the goal of accomplishing something noteworthy.

Some cancer survivors speak of how their experience with the disease has taught them to stop and smell the flowers.  Not me.  I’m not much interested in doing that unless I can pick and press some of the flowers and use them to make something worthwhile.


I now know, deep in my gut, that time is fleeting.

I’m on survivor time.