Wednesday, December 02, 2015

December 2, 2015 — Ten-Year Cancerversary


Ten years ago today, Claire and I were sitting in the office of my oncologist, Dr. William Lerner, feeling stunned by the news of my diagnosis with non-Hodgkin lymphoma. It was too much information to take in all at once. As happens with many who receive a cancer diagnosis, it rocked my world. I can remember sitting there and nodding my head as the doctor went into various details of my grading and staging and what to expect, but only retained about half of it. Thank goodness I had taken some notes to which I could refer later.

During the months that followed, I had surgery to implant a chemo port that would stay in my body for 7 or 8 years. I had six rounds of R-CHOP chemo, spaced at three weeks apart. I lost my hair, and dealt with all the weakness and queasiness that go along with a powerful chemo regimen.

I learned much about the love and support that come from family, friends and church during a season of serious illness. I ran up against the limits of my energy on numerous occasions, and learned how to step back and let others do things for me — never an easy thing for someone in a helping profession.

I had a subsequent diagnosis of thyroid cancer a few years ago, which led to the surgical removal of my thyroid gland followed by radioactive iodine treatment. There has been no recurrence, though I still see the thyroid surgeon, Dr. Jay Boyle, once a year for follow-up, as well as my endocrinologist, Dr. Stephanie Fish, who monitors my Synthroid dose. The thyroid cancer may or may not have been aggravated by radiation from the numerous CT and PET scans I’ve had, to look out for lymphoma recurrences (my doctors say it’s unlikely that the radiation from the scans contributed to the thyroid problem, but I do know the thyroid gland is the body’s canary in the coal mine with respect to radiation exposure — bottom line is I’ll probably never know for sure).

Because the type of lymphoma I have is an indolent form — one that can float beneath the diagnostic radar for years, and when it does recur is considered incurable but treatable — I’ll never be able to take comfort in being declared  cancer-free. But that’s OK. Life is good, I’m feeling fine and I’ve come to appreciate all the lessons this experience has taught me.

I’ve grown in faith, hope and love and am glad this blog has been a helpful resource to many others who are walking a similar road. From the bottom of my heart, thank you to all who have offered me support over the years.

2 comments:

Terry Chapman said...

Wow! 10 years. I am so glad you continue as a friend and ally on the path.
Thanks for you gifts and your courage!
Terry

Nicole.lascurain@healthline.com said...

Hi Carl,

First off, I came across your site and wanted to say thanks for providing a great cancer resource to the community.

I thought you might find this useful infographic interesting, as it shows the detailed effects of chemotherapy in an interactive format: http://www.healthline.com/health/cancer/effects-on-body

Naturally, I’d be delighted if you share this embeddable graphic on http://cewilton.blogspot.com/ , and/or share it on social. Either way, keep up the great work Carl!

All the best,

Nicole Lascurain | Assistant Marketing Manager
p: 415-281-3100 | e: nicole.lascurain@healthline.com

Healthline
660 Third Street, San Francisco, CA 94107
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